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Regional Center (RC) Measures Workgroup - Shared screen with speaker view
Taylor Collison
18:20
Si alguien necesita interpretación en español, haga clic en el globo blanco en la parte inferior de la pantalla con la etiqueta "Interpretation." Luego haga clic en “Spanish” y seleccione "Mute original audio.”
Taylor Collison
18:51
La presentación de hoy se publicará en el sitio web del DDS en: https://www.dds.ca.gov/wp-content/uploads/2022/03/RCPM_Presentation_Spanish_03252022.pdf
Taylor Collison
19:25
Today’s materials are posted on the DDS website at: https://www.dds.ca.gov/wp-content/uploads/2022/03/RCPM_Presentation_03252022.pdf
Taylor Collison
20:18
Submit written comments to: RCMeasures@dds.ca.gov
Marty Omoto
25:47
Good points Nancy - especially on evaluating the measures - how we evaluate the success of the measures - and linked to that, what do we do in terms of action steps to respond to the outcomes of the measures (both good and bad)
Marty Omoto
33:20
Will be important we explain the differences with these incentives (linked to regional center performance measures) and the quality incentives linked to people who are providers - with both incentives always linked to the people and families who need or receive services and supports
NickoleRenee Mensch
38:18
I didn't mean that sorry
Marty Omoto
42:01
Are we including in this measure and incentive regarding linguistic diversity, ASL? Or is that somewhere else? I think it needs to be here and mentioned explicitly so people know
Mark Melanson
43:26
The focus here appears to be measurements of linguistic competence. How will we capture measures for people of color who speak English?
Mark Melanson
44:44
Agree Marty. ASL.
Marty Omoto
46:27
Support Mark's point on people of color who might speak English - cultural competence will need to apply to those people and spelled out so we all understand and work toward that
Mark Melanson
52:28
Agree Eva. While having a RC staff who speaks their language is important for access, it doesn’t get to the access point of receiving services.
Kavita Sreedhar
52:36
In terms of offering incentives for meeting performance measures, it is exceptionally important that the reduction in disparity of POS Data specific to the languages or ethnic communities be included as part of the performance measure for the RC to be eligible to receive an incentive.
Mark Melanson
59:25
Service deliver and service use are 2 very different things. We have heard Dr Ghaly say that utilization is not an outcome.
Kavita Sreedhar
01:02:09
I agree with Eva - it is not only the disparity there but a cultural aspect among many asian and hispanic families is that they support their loved ones at home and do not place them in group homes, care homes etc. The disparity specifically in these communities could be due to the fact that consumers who are living at home with family, are not eligible for SLS services and other Personal assistance services. This needs to be addressed and taken into consideration, since it ties into Cultural competency, and an effort needs to be made to be able to reach out to offer this support or service to these communities.
Eva Casas Sarmiento
01:14:23
For clients of color who live at home, with extended family - there is an implicit expectation that families will provide unpaid support for adult consumers. Many do stay home and provide unpaid care in order to keep their loved ones with disabilities living at home - but sacrifice ability to earn a living wage. This perpetuates the cycle of poverty.
Marty Omoto
01:15:08
Strongly agree with Eva - also Kavita and Tim
Mark Melanson
01:16:13
We must be cautious not to only focus on incentivizing the increase in the “numbers” and not, at the same time, focusing on incentivizing increasing the “quality.”
Mark Melanson
01:22:57
Will this workgroup identify those common components?
Kavita Sreedhar
01:23:14
Exactly ! Same question as Mark
Eva Casas Sarmiento
01:28:05
Who and how the feedback is gathered is critical; fear of retaliation is high with traditionally-underserved groups.
Mark Melanson
01:29:55
Measures identified must include qualified observations and not rely solely on reported satisfaction.
Kavita Sreedhar
01:33:07
Follow up to the Individual and Family Experience component : How does this tie into individual outcomes - is there a way to monitor or track progress with regard to the consumer and tie that into the measure that needs to be fulfilled in order to get the incentive ?
Marty Omoto
01:33:27
Shout out to the ASL interpreters and language interpreters on this meeting!
Mark Melanson
01:37:05
Exactly Maria. Service authorization and service delivery are very different from service access and use.
Marty Omoto
01:38:24
Strongly agree with Beth - that issue of unmet needs (and this includes people who might be eligible for services but for whatever reasons are not currently eligible but are pressing for eligibility) is really huge. I think these performance measures - if done right over the implementation timeline - can help measure that - and more important to doing that, help provide needed actions to respond to each person with unmet needs. That ties back to what I said - what Eva and others have said.
Kavita Sreedhar
01:42:06
You bring up a very good point, MaryLou, if families or individuals report any form of feedback or dissatisfaction, how is that going to be acted upon ? What are we doing with this information / data that we are collecting from families ?
Marty Omoto
01:43:43
People are willing to risk retaliation or whatever if there is the chance that somehow their problem or need with be responded to. We will all have to work together to make these measures - but also other measures and incentives here and in other parts of the system and in other systems - work and be responsive. These can be steps toward that....providing its implemented with enough resources, quality, accountability and monitoring - and resources to address needs (including need for service or support, etc)
Mark Melanson
01:45:10
Satisfaction is tough. People do not know what good is until they have theexperience of what great is.
Eva Casas Sarmiento
01:46:56
To add to Beth's comment (about unmet needs): feedback about individual and family satisfaction about Regional Center services needs to include feedback about satisfaction with generic resources and if the regional center helped the individual secure the generic resource.
Marty Omoto
01:53:07
Thanks Nancy! Agree with you - these are steps in making major changes here and across all the other systems and other silos. Its like, as people have said, rebuilding our plane while its flying 30,000 feet. There is potential that good things can happen with all these things - though it all depends on implementation and making sure we all stay connected and remember, always remember, this is and must be person centered with outcomes linked to that. We can do that while we are flying and building the plane. Just serve good snacks during future meetings and we'll be on our way
Karen Mulvany
01:54:54
As a general point on these satisfaction measures, it will be important to families and individuals that each person-centered data point is recorded not only in the electronic record, but also the IPP so that the individual's own data is visible to them.
Eva Casas Sarmiento
01:56:20
I don't agree that a financial incentive should follow simply from gathering and reporting satisfaction data; it should be tied to satisfaction data demonstrating improvement in level of satisfaction. As an example, POS data has been gathered and reported for years now yet the spending disparity based on race/ethnicity has not decreased over many years much, if at all in most cases.
Fanny Cano
01:57:20
Translation for Dora Contreras 12:04 PMMy name is Rubí Saldaña, why is the disrespect of the coordinators towards the Hispanic community not measured?
Eva Casas Sarmiento
01:58:23
Over 25 years of studies and surveys have already been done. Now let's tie in financial incentives with actual improvement.
Fanny Cano
02:01:03
Translation for Dora Contreras 12:06 PMRuby SaldanaWhy do we not get the link to participate?? It is important to us, and no one sends us this link. We are here and creating this without us in my opinion is intentional.
Fanny Cano
02:02:01
Translation for Dora Contreras 12:03 PMWhy are they not thinking of the Hispanic community?
Mark Melanson
02:02:08
Will the data or reports also include families who have been turned down for early intervention services by racial and ethnic?
Kavita, PRAGNYA.org
02:02:28
Great point Mark.
Eva Casas Sarmiento
02:08:47
Thank you for pointing that out Kavita.
Kavita, PRAGNYA.org
02:08:59
Just wanted to add based on our experience with families as a CBO, the families transitioning out of early intervention drop off the cliff when the child turns 3, there is not a consistent system of delivery of information made available to the families about what next steps are - or some sort of exit process or if the child continues to require to be a regional center consumer
Fanny Cano
02:09:10
Translation for Judy Mark 12:18 PMWhy don't they make it open so we can see who's in the meeting?
Fanny Cano
02:10:11
Translation for Judy Mark 12:18 PMGood morning, I want to know where are the measures that affect us, Hispanics?
Fanny Cano
02:11:14
Translation for Judy Mark 12:20 PMThe challenge is that the coordinators do not have the patience to support the client even if they speak the language.
Fanny Cano
02:14:04
Translation for Judy Mark 12:21 PM That it really happens because that seems very far away, much less with us Hispanics
Kavita, PRAGNYA.org
02:14:38
It underscores the need for a consistent means of systemic dissemination of information to immigrant communities specifically!
Fanny Cano
02:15:22
Translation for Judy Mark 12:24 PMWhy does nobody invites us to these meetings if we are the largest community?
Fanny Cano
02:16:05
Translation for Judy Mark 12:25 PMWhy were these measures created without the Hispanic community present?
Fanny Cano
02:17:22
Translation for Judy Mark 12:28 PMIf these measures are so important why are we not invited?
Taylor Collison
02:17:37
Por favor envíe sus preguntas y comentarios a RCMeasures@dds.ca.gov
Taylor Collison
02:18:10
Submit written questions and comments to RCMeasures@dds.ca.gov
Marty Omoto
02:18:14
Thanks Nancy. ALso thanks Mary Lou for doing a great job facilitating this -
Kavita, PRAGNYA.org
02:18:20
Yes pls do schedule the next meeting
Kavita, PRAGNYA.org
02:18:35
Thank you so much.
Marty Omoto
02:19:24
And ultimately that these measures will lead to helping people get the help or services or supports they need.
Fanny Cano
02:21:08
Translation for Judy Mark 12:29 PMYes, very true, the transition is made so that clients leave the program, not that they continue to be supported. They do this hiding behind generic services.
Eva Casas Sarmiento
02:22:19
Service coordinators definitely need more training on generic resources; OCRA provides a good amount of training on generic resources to regional centers (IHSS, special education, other public benefits).
Marty Omoto
02:22:30
Thanks Brian and Ernie - and be safe everyone. One day I will show up wearing a bow tie so I look like Mark.
Eva Casas Sarmiento
02:22:41
Thank you all.
Mark Melanson
02:22:45
LOL @ Marty