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RC Performance Measures Workgroup - Shared screen with speaker view
Amy Wall
20:09
Si alguien necesita interpretación en español, haga clic en el globo blanco en la parte inferior de la pantalla con la etiqueta "Interpretation." Luego haga clic en “Spanish” y seleccione "Mute original audio.”
Amy Wall
27:13
The summary from our last meeting is available online here: https://www.dds.ca.gov/wp-content/uploads/2021/10/RCPMmtg_Summary09222021.pdf
Marty
33:23
Welcome Marko!!!
Marty
40:21
The CA Health and Human Services (CHHS) guiding principles are really important because it is meant for all people working in all the departments under CHHS - and also all people the agency and departments is supposed to serve. It is foundational - and different because it looks at the "whole person" and services and supports that are person centered with outcomes tied to that
Diana Pastora Carson (DVU, Sibling Advocate)
43:07
All of these guiding principles are exceedingly important to me. I can’t pick one.
Eva
43:23
I appreciate the guiding principle that calls for services to be not just linguistically responsive but culturally responsive to consumers and families too; and having the POS data provided on an annual basis helps us see if we are moving the needle in the right direction
Kavita S, Ally, PRAGNYA.org
46:08
For me, as a parent and an ally of this community, one of the key guiding principles for improving the “quality of life” of individuals with Developmental differences is Community Integration and HCBS combined with the freedom to choose, Consumer choice !
Rick Wood
50:59
Thanks Michi for comments related to disparities.
Karen
54:43
We need to find a way to measure information that is already required in IPPs in the Lanterman Act -- 4646.5(a)(8) Regular Periodic Review and re-evaluation is required in the IPP “to ascertain that planned services have been provided, that objectives have been fulfilled within the times specified, and that consumers and families are satisfied with the individual program plan and its implementation.”
Joyce
57:43
Well said, Marty!
Diana Pastora Carson (DVU, Sibling Advocate)
01:00:26
Agree with Karen. We need accurate, reliable data to measure progress.
Diana Pastora Carson (DVU, Sibling Advocate)
01:00:30
Yes, Tim!
Karen
01:00:54
Tim raises a great point!
Marty
01:02:48
Also - the state (CA Health and Human Services) is working in a potentially historic Health Data Exchange Framework for all agencies and departments including counties and Medi-Cal managed care plans. DDS is part of that stakeholder group including all other health and human service departments
Joyce
01:04:18
Great news, Marty!
Armida
01:09:54
Totally agree Marko data is very important and key
Amy Wall
01:12:33
Translation of Rubi's questions in the Q&ARubi Saldana 02:50 PMFirst of all, what data exactly are we talking about? Who is going to create that database? Is it data that the community wants and benefits?If so ? How are you going to ensure that this data comes directly from the community and not from other sources?
Marty
01:12:34
CA Health and Human Services (CHHS) Health Data Exchange Framework effort - amazing effort - here is webpage: https://www.chhs.ca.gov/data-exchange-framework/
Marty
01:13:01
Great overview and points Marko.
Marty
01:16:41
The guiding principle regarding appropriate linguistics, etc needs a reminder that it includes babies, children and adults who are deaf and hard of hearing - it DOES include those people but people reading it often may not remember or know they are included. Just something we need to remember and raise each time.
Fanny Cano
01:23:02
Rubi Saldana 02:50 PMFirst of all, what exactly are we talking about? Who wants to create this database? Does the community need or benefic from this data?
Marty
01:23:27
Good comment Joyce.
Fanny Cano
01:26:02
Rubi Saldana 02:50 PMIf that is the case, how are you going to ensure the data is directly from the community and other resources?
Marty
01:27:26
Shout out and support to comments Gabriel made about individuals (consumers) and if minors, families who are given informed choices and options to make decisions and choices. Also this underscores this also means choices or possible solutions that cross system lines - to make the health and human services of CA really work together in helping all of us
Marty
01:29:36
Totally support what Anthony said. Underscores Secretary Ghaly's view that outcomes need to be person centered - that utilization is not an outcome, and focus on the whole person and equity - values Marko has pushed and is talking about now.
Fanny Cano
01:32:49
Rubi Saldana 03:04 PMAs a Hispanic mother, and mother of teenagers, I just want to share that my community is evolving. We are no longer thinking about our children going to work after high school in jobs where they are not paid even the minimum. In my opinion, if you are going to help- help in developing education, why not? Why is higher education not a priority over jobs? Maybe it is for some, not for Hispanics! Our only option is to send our children to work.
Marty
01:37:54
Good point Eva - your point is important because it underscores the need to get beyond utilization numbers and to get to the person - whole person and outcomes linked to those persons. That is missing now - and its not easy to do - but we need to do it to make transforming changes that we all want and want Nancy and Marko spoke of. Also, the CA Health and Human Services is taking steps - at least on health related data - to create a framework for all state agencies under CHHS to follow. That should move us in the right direction. CA Health and Human Services (CHHS) Health Data Exchange Framework effort - amazing effort - here is webpage: https://www.chhs.ca.gov/data-exchange-framework/
Diana Pastora Carson (DVU, Sibling Advocate)
01:40:10
Well-said, Dora.
Fanny Cano
01:42:05
Rubi Saldana 03:05 PMIn my opinion jobs with a low standard only lowers the self-esteem of our children instead of helping. The era of working and thinking small for Hispanics is over, there is no more, we have raised the standard.
Marty
01:44:18
Thanks Michi for your comments - strongly support it. Whole person - tied to meaningful outcomes tied to the person (or child)
Karen
01:45:03
Learning that something doesn't work is important information.
Diana Pastora Carson (DVU, Sibling Advocate)
01:45:52
Thank you so much, Marko, Nancy, and all. I must leave for a class I’m teaching. Thank you!
Marty
01:46:00
Agree with Marko - doesn't have to be perfect - but it tries out a solution. Also we need to recognize that no solution is going to be permanent. We know this in our families - when we set up support services that we know are temporary and fragile.
Marty
01:46:18
THANKS Marko. You can buy us lunch (door dash is fine). LOL
Marty
01:47:16
We can if ASL people can stay? And the language interpreter too ?
Marty
01:47:57
Interpreters (ASL and language) are fantastic including the help Jacquie gave.
Eva
01:53:35
I'd like to see a performance incentive for RCs that is linked to increasing access to "generic resources" that are supposed to be provided by other agencies; do RCs have MOUS with other agencies? liaisons to solve problems informally?
Joyce
01:54:53
What about consequences when incentives are not producing desired results?
Amy Wall
02:02:34
Email: RC Measures@dds.ca.gov
Marty
02:02:53
Good points Mary Lou - thanks.
Kavita S, PRAGNYA.org,Parent, Ally
02:04:11
Can we talk about accountability and responsibility ?
Kavita S, PRAGNYA.org,Parent, Ally
02:05:27
exactly Tim. I was typing up the same thing. It is important to address how accountable and responsible RCs are to meeting these performance measures.
Karen
02:06:38
Really nice job laying out the sequence of required actions.
Marty
02:11:23
Nancy - can we save and post the video too?
Marty
02:11:42
I need to dress nicer then
Roy Schutzengel (Elwyn)
02:11:51
Thank you for a very engaging meeting and an impressive group of speakers and participants!