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Regional Center (RC) Measures Workgroup - Shared screen with speaker view
DDS Info
05:56
Today’s materials are posted on the DDS website at: https://www.dds.ca.gov/initiative/stakeholder-events/
DDS Info
06:09
Si alguien necesita interpretación en español, haga clic en el globo blanco en la parte inferior de la pantalla con la etiqueta "Interpretation." Luego haga clic en “Spanish” y seleccione "Mute original audio.”
DDS Info
06:23
La presentación de hoy se publicará en el sitio web del DDS en: https://www.dds.ca.gov/initiative/stakeholder-events/
DDS Info
06:52
Comments? Questions? Email: RCMeasures@dds.ca.gov
DDS Info
07:25
¿Comentarios? ¿Preguntas? Mande su correo electrónico a: RCMeasures@dds.ca.gov
Mark Melanson
24:14
Appreciate the recognition in the comments from both Nancy & Ernie that these are baseline/starting points and that measures can be further modified/refined in future years.
Diana Pastora Carson
41:18
Also, wanted to clarify that “cultural diversity” is not the same thing as “equity." DDS definition of equity needs clarification.
Leslie Morrison
45:39
Quality Incentive measures for providers targeting outcome that individuals and families are supporting by staff who communicate in the individual's preferred language:Phase 1 Percentage of DSPs within a provider agency who are fluent in at least one non-English language, including ASLPhase 2 Percentage of DSPs within a provider agency who are fluent in at least one non-English language (including ASL) of the population served.
Eva Casas Sarmiento
47:04
On issue of Equity and Cultural Competency: I worried there was no similar priority area for the Provider Quality Incentive Measures because if RC measures and Provider Measures do not align then the different parts of the system are not working together and prioritizing the same things. When this workgroup started and we took a poll on areas of priority - equity and cultural competency was the #1 priority. At one point we even considered having specific equity and cultural competency measure on every one of the 7 priority areas we ended up with instead of separately.
Marty Omoto
48:53
I think we all need to work on this with a strong sense of URGENCY - that change needs to happen, and sometimes we try something new out,but we have to make outcomes mean something to people who need help - especially those people and families and others who feel left out, or have been shut out or somehow ignored for whatever reasons. The sense of urgency should - will - be a foundation for what we do. I think if we do this - with that sense of urgency - it will help us - including the things Diana said (that I agree with totally) get where we need to go.
Kavita, Parent, PRAGNYA.org
50:10
It would really be appreciated if we can see the performance measures (the final articulation of the same) as a workgroup prior to them being published. I agree with Diana, it is really hard as a family member/ caregiver to "wait" for things to improve or change or as even an CBO to try and refer individuals for services or help advocate for the same, however, if we are met with some of the same barriers over and over again, without a proactive effort to change things around; the individuals who are most vulnerable are the ones left without the much needed support and the Quality of Life of everyone in that individual's circle of support is affected. F
Marty Omoto
54:01
Agree with what Ana said - also we need to make sure we are looking at other systems too that can help provide services and supports that we are eligible for - have rights to as Californians - including Medi-Cal managed care plans participating in CalAIM (CA Advancing and Innovating Medi-Cal) that can mean a lot of different services (including Long Term Services and SUpports) that they in the past have not been able to provide - and can possibly complement what a regional center or IHSS can provide - also other statewide or county programs dealing with housing, behavioral/mental health, transportation, etc. I think Ana - and others - all of us - really underscore the need for DDS and all of us together to view the people who need services/supports as the whole person linked to person centered outcomes. I think we all agree on that - we just have to do it as we move ahead with these measures - and the other measures.
Kavita, Parent, PRAGNYA.org
57:30
For example: “cultural humility / overcoming implicit bias” is an essential ingredient for improving cultural sensitivity and hence access to services. For the asian/ south asian cultures, “delaying is denying" - and seeking “help" is a matter of shame/ guilt. If there is even the slightest delay (even merely time lags in the RCs or the intake coordinators in responding to them like they are now) they will not reach out and they will shy away from seeking the much needed support for their individuals. I experience it myself even as an active parent advocate, I see so many of our families struggling even for a simple service such as respite care/ behavioral respite care (for those with higher behavioral needs) that the quality of individuals and families are reduced to being confined to the family home all day. This is the reason I am requesting for a preview of the final measures, since we have shared so much during our measures discussion meetings that we would like to see if it is reflected in the fina
Marty Omoto
59:32
Agree with my friend Joyce and her words - and underscores that sense of urgency tied to justice, to hope and what Diana said - trust. Trust is something we can see and feel as time goes on with this - and how we all respond to each other as we make this all work. Won't be easy - but the alternative is worse. Many of us know first hand - as I do - the pain and feelings of despair when we encounter injustice and constant barriers time and again. We can remember that - and use that as our foundation of urgency as we move forward on this and everything else. Thanks Joyce, Ana and Diana and Kecia - and everyone else.
Marty Omoto
01:04:13
Good question Beth and comments Gabriel. Like what Nancy said in response. I think its on all of us to make this work and to push for the changes we need to see together. Like an endless Tupperware party (they still have those, don't they. I know Amy Wall still does 'em)
Kavita, Parent, PRAGNYA.org
01:04:13
I am happy to stay involved as well!
Eva Casas Sarmiento
01:05:33
Thank you Leslie for the information about Quality Incentive measures about language capacity. Adding to Kavita's comment above about cultural humility, on this workgroup we emphasized that language capacity was one very important criteria but equally important was cultural competency/sensitivity (because you can have someone who speaks your language yet does not understand your unique cultural/racial values and barriers faced).
Marty Omoto
01:06:30
Thanks Ronke - appreciate your work.
Mark Melanson
01:06:37
Thanks for asking the question Beth. I fully expected to be called back to duty on the workgroups to receive status updates and to advise on any course correction along the way.
Kavita, Parent, PRAGNYA.org
01:07:24
I think it is exceptionally important to set the "bar" higher - while change is a process, it is important to ensure that the efforts are accelerated right from get go. There is so much being poured into serving this vulnerable community, by everyone, if we could just start with requiring more than just collection of data or publishing of numbers in the first year itself, it would set the pace for the work ahead
Kavita, Parent, PRAGNYA.org
01:07:33
I just said that Tim! 🙂
Kavita, Parent, PRAGNYA.org
01:08:01
100% agree with Tim!
Marty Omoto
01:11:35
Hey Tim! This (and other) workgroups have a lot of outspoken people - me included. Amazing we all get to talk! LOL. We'll work together - all of this - to make work - and as time goes on - it gets stronger. It won't be easy. Good to see you always Tim!!!!
DDS Info
01:13:57
RCMeasures@dds.ca.gov
Marty Omoto
01:15:45
Thanks to Nancy, Ernie and the DDS team as always. Thanks to the interpreters.
Karen Mulvany
01:17:59
I really appreciate what DDS is saying about ultimately getting to a more comprehensive service provider listing that includes availability and competencies in language, etc.
Marty Omoto
01:19:12
Need to look at the whole person - and so that means even those services that might be outside the DDS system of funded services. Agree with Eva
Joyce McNair
01:22:07
Is it possible for RCs to proactively identify potential providers in the greater human services community who may be open to collaboration for needed services?
Roy Schutzengel (Elwyn)
01:25:16
To Marty's point: The common denominator to all measures implemented, as well as other legislated or budgetary changes that impact the DDS-served population needs to be whole-person improvement in satisfaction in services received. A well designed consumer survey looking at all of the desired outcomes that each measure is reported to try and improve will let us know if the introduction of these measures was valuable.
Gabriel Rogin
01:25:53
Good question Joyce. The short answer is yes. Happy to have a bigger conversation about that sometime soon - opportunities, barriers, etc.
Marty Omoto
01:27:09
Support what Joyce said - I mentioned it before too - and that underscores looking at the whole person and not from the perspective only from the system that person or family is in. So that means looking at accessing possible help in other systems - housing, Medi-Cal (CalAIM - CA Advancing and Innovating Medi-Cal), etc. I think as Gabriel said, some people in RCs do this - but we all have to work together to make this work - and also work with other systems to develop services that may not exist now (and that regional centers might not be able to provide) - but that we need.
Marty Omoto
01:29:49
I have confidence in DDS in upgrading that Commodore 64 system it uses for data to catch everything we need.
Marty Omoto
01:30:44
BTW, if we really work to make person centered planning tied to person centered outcomes that also looks at the whole person - if we really work toward that - than individual unmet needs will surface.
Kavita, Parent, PRAGNYA.org
01:32:43
100% Marty. I think there needs to be a major overhaul in the Care Home Provider situations. There is literally No Person Centered Programming available for these individuals. It is entirely dependent on their caregivers or staff. How are we tracking person centered outcomes there ?
Marty Omoto
01:33:31
Focus groups are other options - led by a trusted or credible community group, etc
Kavita, Parent, PRAGNYA.org
01:35:54
Also what is the measure for Person Centered Practices being implemented by SLS providers for individuals entirely dependent on them (CP) - I am a PCP for a dear friend, an amazing self advocate but is stuck in his bed for the next two weeks, since his primary SLS live in provider is on vacation. How are we ensuring that Service Providers are being held to a better standard of service to our individuals. This needs to be tied into the measures.
Diana Pastora Carson
01:35:55
Thank you all for listening and responding to our concerns.
Karen Mulvany
01:36:18
Thank you to all the DDS staff for listening -- and to all the great input from the committee and community!