Zoom Logo

Service Access & Equity Workgroup Meeting - Shared screen with speaker view
Pablo Velez
16:21
HI All: Nice to see you all!!
Ken Barnes
16:57
Hey Pablo, and hello to all the family today!
Amy Wall
17:11
Good afternoon everyone!
Amy Wall
20:50
Comments? Email them to DSTaskForce@dds.ca.gov
Fernando Gomez
21:29
Buenos Dias everyone…..
Amy Wall
21:56
Para interpretación en español, por favor haga clic en el botón de “Interpretación” en su pantalla y seleccione el canal “Spanish.” En el canal de español, usted puede seleccionar “Mute original audio” si solamente quiere escuchar al interprete. De otra forma, va a escuchar a los presentadores de inglés en el fondo.
Pablo Velez
32:30
HI Pete: Do we have a map of the areas with lower vaccination percentages? They will be high risk for increasing infections.
Kelly Kulzer-Reyes
41:44
Thank you, Ken!
Eva Casa-Sarmiento
44:16
Thank you for the work of the focus group Ken.
Marty Omoto
56:47
This is a good proposal - tho much depends on how it is implemented. Critical is linking person centered needs (including unmet needs) and outcomes to the community navigator program that is really critical for implementation - real time and by the end of the 2021-2022 budget year (assuming the proposal is approved). At the end of the day, person centered outcomes matter for all of us - and what we do with those outcomes in terms of fixing a problem, identifying next steps, etc. Thanks! Marty Omoto
Amy Wall
59:10
Here is the link to the full trailer bill language: https://esd.dof.ca.gov/trailer-bill/public/trailerBill/pdf/318
Fanny Cano
01:05:00
In my opinion, I expected that everyone is already trained, we have 3 years already with this problem, the solution for inequality IS NOT MORE TRAINING
Fanny Cano
01:06:07
Why do you think training will help? It hasn't helped in years, why do you still think this is going to help us?
Fanny Cano
01:08:37
Translation from Rubi: The Hispanic community is here, ask us, no specialist can tell you what is happening in our community, only we can do that.
Pete Cervinka
01:08:50
Statewide data on vaccination progress, by demographic group and by county or zip code, can be found on this site: https://covid19.ca.gov/vaccination-progress-data/ Each dashboard has filters that allow you to see the data in different ways. Please note the data on this site is NOT specific to people with intellectual or developmental disabilities.
Amy Wall
01:08:57
Thanks for translating Rubi's comments/questions for us Fanny
Fanny Cano
01:12:52
Translation for Rubi: Nothing will work until we face and accept the intimidation that exists among the Hispanic community, I do not agree with anything that this specialist says, his numbers in my personal opinion are wrong, as a Hispanic I still feel thatendurance.
Fanny Cano
01:17:05
Translation for Rubi: The Hispanic community makes up the majority of the state and we are the community that is most affected by inequalities, we can't explain to those who are not ready to listen, accept and face the problems with responsibility, until there are no consequences, nothing will change in my opinion.
Fanny Cano
01:20:54
Translation for Ruby: I really appreciate all the efforts, the team has really made an effort and I acknowledge and appreciate it, unfortunately the plans that I hear are not going to solve the inequalities, I hope I am wrong but I don't want to return to this chat in 3 years and to say exactly the same thing, we the Hispanic community are the only ones who can say the barriers, and we need someone to advance without fear of the system.
Anna Wang
01:22:06
How many people/staff were involve in Dr. Mizaian's project?
Helen Setaghiyan
01:26:35
@Anna Wang Our project includes 6 main members: 3 Parent Navigators, Dr. Mirzaian (project director), a Parent Specialist, and myself (project coordinator). However, we would not be able to complete our work without support from our UCEDD Director, Dr. Larry Yin, as well as the referrals we receive from all of the health care providers in our clinic. Finally, we have been able to gather advice/guidance from our Parent and Peer Advisory Committee which consists of parents of individuals with I/DD and self advocates.
Anna Wang
01:27:36
Thanks so much.
Pablo Velez
01:28:11
Can you post the email of Dr Mirzaian for questions?
Christine Mirzaian
01:30:03
Thank you cmirzaian@chla.usc.edu
Pablo Velez
01:31:47
Thanks for the presentation.
Fanny Cano
01:32:18
Question 1: What key elements are important to consider for the proposed statewide Community Navigator program?
Amy Wall
01:32:44
Question 1: What key elements are important to consider for the proposed statewide Community Navigator program?
Anna Wang
01:34:36
Agree 100% with Kimberly Mills
Kelly Kulzer-Reyes
01:35:16
intersectionality! Yes, Kim!
Amy Wall
01:36:25
Attendees, we welcome your comments and thoughts on the discussion questions. You can post them in the Q&A, or email us directly at DSTaskForce@dds.ca.gov.Also, we are doing our best to answer questions as they're posted and will follow up after the meeting if we're not able to get to them during this time.
Fanny Cano
01:37:45
Translation for Rubi: As part of the majority and being the most affected according to the existing data, I think we definitely need to reinvent everything, the Hispanic community no longer has time or energy to sustain a system that is not supporting them, on the contrary, intimidation and retaliation in the system are only getting worse, there is a lot of resistance from some centers, we are in the middle of these battles every day, it is emotionally and mentally draining to try to preserve our system.
Fanny Cano
01:39:22
Translation for Rubi: And establish relationships at the same time, those of us who are in the middle are running out of energy and there is no time for training, we have to take action and accept the change.
Eva Casa-Sarmiento
01:40:01
(1) Parent Navigators to have lived experience; (2) be able to provide in-person support at meetings with generic resource agencies; (3) have both cultural and language sensitivity; (4) build trust by not judging
Kelly Kulzer-Reyes
01:41:02
The California Community College System is committed to anti-racism. We need that to be system wide for all state agencies.
Fanny Cano
01:41:27
Translation for Rubi:I understand that there are many barriers, but if we have not solved the proven inequality among the Hispanic community, how do we hope to solve the others?
Kelly Kulzer-Reyes
01:45:34
There are many lessons learned about person-centeredness in the pandemic. I want to make sure we are compiling what has worked better during the pandemic for families. Then, learn how to continue flexibility and person-centeredness.
Alison Morantz
01:49:52
Good point, Kelly! We need to incorporate lessons learned from the pandemic.
Pablo Velez
01:52:12
Kelly your point is vital. It has been a forced study period and we need to make sure the data is captured and analyzed.
Kelly Kulzer-Reyes
01:52:26
Thank you, Pablo and Alison!
Helen Setaghiyan
01:52:28
I agree with Dr. Velez, educating our healthcare providers can go a long way!! Something that wasn’t mentioned in our presentation - our Parent Navigators regularly train our resident physicians at CHLA, teaching them about the Regional Center system and other resources/services that are available for families. Quite a few of our residents come from outside of California and have no background regarding the Regional Centers.
Pablo Velez
01:59:42
Do the family resource centers are finance independently from the Regional Centers? At times, they feel the need to align on certain policies that is not helpful advocating for the families.
Kelly Kulzer-Reyes
02:00:04
Pablo, that’s an important question.
Fernando Gomez - ICC
02:00:32
One of the key lesson we learned this past year is the impact and effectiveness of engaging families on digital platforms. An example is IPP’s. We have had a strong participation and effectivness in meetings around IPP’s. Going forward and Post Pandemic we should keep digital meetings for IPP’s as an option for families.
Alison Morantz
02:00:50
I agree, Pablo! I don't think they will be perceived as independent. I think maybe the consistency Nancy is alluded to it is important on the evaluation side, but doesn't necessary require that the same navigator model be implemented everywhere. There could be real value of experimentation, as long as each program is meaningfully evaluated.
Fernando Gomez - ICC
02:01:01
Yes, Marty, timing is crucial and of upmost importance…
Kelly Kulzer-Reyes
02:01:43
Fernando- I’m so glad you brought this up! I have lots of examples of success using digital platforms!
Pete Cervinka
02:01:45
Pablo, yes, FRCs are funded separately from RCs. They do social services, First 5, housing, and many other services too. They are nonprofit organizations. There are more than 500 of them in CA.
Alison Morantz
02:02:24
Marty is right! Note that some of these outcomes are ones that would require an independent quantitative (in additional to qualitative) form of evaluation.
Anna Wang
02:05:40
Quantitative evaluation is certainly important but if we don't have systematic change in all regional center which controls the success of service access so all the community navigator's work will not be reflected in the disparity data.
Fanny Cano
02:08:15
Translation for Rubi: We understand the problems of other ethnic groups and we are not insensitive to that, we will not forget, but once again, if we do not fix the biggest inequalities already verified, how do we hope to help other ethnic groups?
Kelly Kulzer-Reyes
02:08:27
Cultural humility and specific anti-racism practices are important elements.
Marty Omoto
02:09:26
To underscore points made - the community navigators need to cross over the other systems that serve people and our families...whether special ed, mental health, IHSS, Medi-Cal, housing authorities, transportation., higher ed, employment.....we all need to change and take responsibility and ownership to making this happen. Also continued awareness and education (as Kimberly said) for all of us....data and evaluation must be person centered - also how does this intersect with other efforts to improve outcomes (ie the SCDD project on workforce outcomes with CCLN and others). ALSO: elevate recurring problems and resolve at state level that may come up with community navigators...meaning if we keep hearing same type of problem over and over - lets solve statewide
Aubyn Stahmer
02:09:40
Are we reaching families who would not otherwise have accessed services?
Aubyn Stahmer
02:11:17
This would be a good opportunity to understand better if the services offered are that families want and if they are culturally responsive -- that is, if we don't see change in POS, is it because services are not appropriate for the families.
Kelly Kulzer-Reyes
02:11:22
When a family has zero POS, do we have reasons why that is? Shouldn’t that be documented?
Kelly Kulzer-Reyes
02:11:52
Yes, Aubyn!
Aubyn Stahmer
02:12:56
Sorry, i have another meeting at 4. excellent and important discussion.
Alison Morantz
02:13:46
Fernando made a good point about the importance of allowing families to select a virtual format for IPPs. That seems like an important lesson learned from the pandemic to improve access and equity.
Kevin Rath
02:14:40
In order to identify outcomes, we need to identify exactly what the mission of 'family navigation' in contrast to case management. I thought case managers were supposed to assist people to access services. Those two activities, referred to as 'case management' and 'navigation', don't seem to be operationally differentiated. First the distinction needs to be made operationally, and then the roles can be clearly identified. Then the outcomes can be created. I am not an expert on family navigation, so I may just be missing something.
Eva Casa-Sarmiento
02:15:27
I would like to see data gathered that includes an actual benefit amount - if PN's help families access generic resources, try to put a value on that service
Marty Omoto
02:15:43
When community navigators provide help or clarification for people - those solutions, clarifications need to cross over to other areas - so the solution or clarification helps everyone (ie for those in fair hearing; those who filed a grievance with OCRA; those who are stuck in fair hearings in other systems. Meaning soultions need to cross over - leverage it
Kelly Kulzer-Reyes
02:16:32
Families and circles of support that choose to should be able to continue meeting virtually post-pandemic. This can address person-centered equity and meet needs. Thank you!
Kelly Kulzer-Reyes
02:16:43
For IPPs and everything :)
Amy Wall
02:16:52
Send input to: DSTaskForce@dds.ca.gov
Fanny Cano
02:17:27
Translation for Rubi: We are dealing with many systems at the same time, there is no longer time for training. Now we are also dealing with the judicial system, they are shooting at us and they are killing the Hispanic community. Isaías Cervantes is not only part of the Hispanic community, he is part of the IDD community, and now we continue to deal with inequalities and, above all, with the judicial system and the Police Department.
Marty Omoto
02:18:05
Thanks to everyone - thanks Karin for great facilitation - and Nancy and the team....also all the good comments by workgroup members
Alison Morantz
02:18:14
Let's make digital platforms a permanent aspect of IPPs at choice of consumers.