Si alguien necesita interpretación en español, haga clic en el globo blanco en la parte inferior de la pantalla con la etiqueta "Interpretation." Luego haga clic en “Spanish” y seleccione "Mute original audio.”

Hi! This is Katie, the other CIT interpreter. I am here and can turn my camera on when Jason and I switch at about 1:20!

La presentación de hoy se publicará en el sitio web del DDS en: https://www.dds.ca.gov/initiatives/ds-task-force/

You mean task force members?

I would love if DDS could have a video that goes through each aspect of the vision in a positive and inspiring way. This vision is truly inspirational and a video would be great to portray that inspiration to others.

That’s a great suggestion Yvette. In one of the workgroups we discussed the fact that we have to take true baby steps on the way towards achieving our new goals so that it is really necessary to lay out the ultimate vision in a way that people can envision it. A video would help a lot with that.

The audience for the video would be service providers, new staff throughout the system, parents and individuals also

We have to make sure that the person centered aspect of each of those priorities - and the person centered outcomes and whole person outcomes are captured in the state's data systems and used to provide accountability, monitoring and next steps. That is foundational to everything

Nice segway to connection to DHCS collaboration regarding medication but also quality of care in pediatrics for children with medical fragility

We must thoroughly define what accountability means. What are the consequences?

Yes, Marty. DHCS is focused on moving everyone to MediCal Managed Care. This can be very problematic for children and adults in Developmental Services, especially sunsetting CHDP, in regards to access and quality of services, especially in pediatrics.

Marty makes excellent points: It's not going to be perfect, but if we know we can fix it, then we work toward a more perfect system.

As well as medical care in the community . . still an issue . .for adults

Yes, Debbie.

. .well said Terry. . thank you

BTW, not on the agenda, but need to have highlighted in a future meeting is what the state - including DDS and all of us as partners, address and respond to the issues related to people with down syndrome and their families and the likely development of Alzheimers - and what can people do respond, take next steps to mitigate, and also to help in developing need services and supports for those people with down syndrome who are over 50 years old. Thanks

On a personal note, I am a extended family unpaid caregiver of a 29 year old young man with down syndrome who lives with me (known him since hhe was 7 years old), after his mom died several years ago (they had no family). So we have a personal interest on the issue of down syndrome and the needs regarding Alzheimbers. DDS and us need to make sure the other state groups and task forces that deal with Alzheimers include this issue of people with down syndrome and them likely to develop Alzheimers. Thanks

STRONGLY agree with Marty's note about the need to address issues surrounding people with downs.

The employment workgroup is probably the best in terms of membership - diverse and innovative. Really good group of people - need to get the workgroup to really brainstorm and use their expertise and ideas to also come up with actionable next steps. Really good group of people (and I am not even on it! LOL)

Thank you Brian! Nice review!

To echo Marty on people with Down syndrome and Alzheimer’s disease— housing and care facilities are a huge concern. While I am hoping there is a cure for ALZ before my own daughter has it, I suspect planning for housing and care now is needed for the whole community.

Strongly support what Shella commented on regarding housing. If we credibly implement services and supports based on the whole person and person centered, then housing - transportation - food security - health - need to be issues we focus on as foundational.

What Marty Kelly and Shella are talking about requires strong partnerships with other agencies and their various departments. This is beginning to happen but we should continue to be very intentional about continuing to do the breaking down of silos.

Client reporting on satisfaction needs to be accessible - not just surveys, but the ability to report on a telephone hotline or easily accessible public comment forum.

Kristin Rains has a good comment and question in the QandA regarding the need for the state (and us) to address the growing needs of adults with I/DD who are also developing dementia - all aging adults are at risk she points out, including people with down syndrome who are at high risk for developing Alzheimers. Thanks Kristinn for raising this

Agree, Yvette — There are national coalitions between Global Down Syndrome Foundation and Alzheimer’s Society, but housing and long-term care collaborations are vital.

Also agree with Marty. One of the recommendations was to explore new service models based on flexibility and individual needs. The would be a good area to exploring applying a such a flexible model.

(correction: Alzheimer’s Association, not Alzheimer’s society)

Thank you Nancy for adding Housing to the next Community Resources subcommittee meeting. I agree with suggestion to start a housing-specific workgroup.

Thanks Connie and Nancy. I think the implementation is critical that we all monitor and work together on - in real time - to address any problems and help course correct and address new situations that we didn't anticipate and to take advantage of any new technology that is available that was not before. Also want to say again that we need to make sure that our outcomes are person centered, based on the whole person - and not on the conventional way of measuring outcomes which is utilization (use of services). It is hard to do outcomes link to person centered needs and supports and choices - and also based on the whole person - but it is so critical to do if we want to see the foundational and transforming changes that these new measures and priorities represent. "We must be the change that we want to see in the world" said Ghandi. Person centered outcomes and looking at the whole person will also help - if done right - to uncover unmet needs (as Beth Burt and others has mentioned time and again).

We had a statewide workgroup (that Connie and I and others were on, created in NOv 2013 by then director Delgadillo) to work on implementation of Self Determination. We met for years - but stopped meeting about two or three years ago. That was a mistake - because we could have helped monitor and come up with ideas to resolve on-going problems or issues in real time. That is why having the other workgroups need to focus on implementation of priorities and measures - to make sure implementation is happening in the right way and to address problems and help provide ideas to course correct.

People should read Q&A for posting made by Kristin Rains - but also Maureen Fitzgerald on issue of outcomes and utilization. I actually was pushing outcomes that are person centered and looking at the whole person - but that doesn't exclude the need to collect outcomes based also on utilization, which can provide important info. Problem is the state (and feds) and local government use utilization as the only or main outcome (especially utilization tied to spending).

BTW, shout out to the translators for this Zoom meeting. The best

Has a decision been made on extending funding for PCP/transition into SDP using 024 purchase reimbursement?

What is being done to resolve the challenges with FMS agencies?

Agree with the question and concerns raised by Kathy and Connie. Also I think Janelle Lewis' point on FMS is really urgent

I agree with Connie !

The turnover in Regional Center service coordinators has an impact that is much broader than those calling about self determination. Let's not loose focus on the other hundreds of thousands of consumers being served.

Excellent points Kelly!

Dana—the Service Coordinator I was referring to has been at RC for over 20 years! This wasn’t a turnover issue, it was a lack of interest issue.

With the return to in-person meetings, my hope is that virtual meeting access will remain a part of the meeting structure so that the increased accessibility remains.

I agree with Janelle's comment above.

Another workforce issue @Michi is about those folks that have been around for years 20-30 years in system provision a certain way and don't want to change...too much for them Only babies like change (wet diapers)...

Lol Yvette

I echo all of Michi's comments

Marty is right—there are lots of great Service Coordinators.

Very good points Marty.

Thank you, Marty. Individual stories need to be heard.

Can we get an update on April 1st rates and the rollout. The 4th batch have not reached Service Providers.

Thanks Marty, great points

"Implementation is where good ideas go to die." We cannot let that happen.

Outcomes that are linked to person centered plans and needs and that looks at the whole person are personal stories. Data needs to be collected that reflect that. Not just utilization.

Agree with all the outcomes based and person centered discussion.

We need data and stories.

Data systems - as the systems are being enhanced or overhauled - need to include data that is not just utilization numbers, but also data that includes person centered needs and outcomes and also data that looks needs and outcomes of the whole person (and whole child for those in Early Start)

Please address the FMS challenges in the next SDP update. Thank you.

Dana had a good question or comment or request foran update on April 1st rates and the rollout. The 4th batch have not reached Service Providers.

Also, we need to get update on FMS issues that Janelle raised - very critical issue as it connects to Self Determination

There is some confusion regarding which residential services should complete the survey. ICF providers should not complete, correct?

Can't remember if survey includes agencies that have people who serve families in Early Start - does it? If not, it needs to

Will all DSP staff regardless of what vendor they work for have the ability to attend DSP university?

I really appreciate the Department's efforts to better understand and address the workforce crisis. Thank you!

DSP survey- did I hear that correctly- 1 response only. We have 200+ DSP's and only 1 response?

individual DSPs are not being surveyed. the providers employing them are being surveyed so if you are a provider that qualifies you can give info on your work force.

Interested in working on a potential survey focused on consumers with No POS? To volunteer, please email Alejandro.Mora-Huerta@dds.ca.gov THANK YOU!

So only some vendors are going to be on the survey,why?

We don't use DSPs as they are defined in Early Start...I think.

I volunteer Beth Burt for the NO POS survey workgroup - she has raised this issue a lot. Also Marcia Echileberger

Here is the link to the Department's website with info about the direct service professional staff stability survey: https://www.dds.ca.gov/rc/vendor-provider/dsp-workforce-survey/. The Frequently Asked Questions document near the bottom of the page contains a lot of information that answers questions in the chat and Q&A of this zoom meeting.

How are you defining Direct Support Professionals? What types of services? Sorry if I missed that! For next time...

Thank you Nancy and the entire DDS team for making this forum available and being so receptive to our input. And thanks to the DSTF for all the comments acknowledging that there are many terrific people working in the system even if we have some who are burned out or less passionate than we’d like.

How about negotiated rate homes? Because I think providers of them think that DSP university won’t apply to them

Good point Shella. I raised it before - that a survey is needed to survey the people who are direct care or direct support professinals. Person centered means being person centered for people who provide services, etc

Thank you everyone! Great meeting and discussions1