Si alguien necesita interpretación en español, haga clic en el globo blanco en la parte inferior de la pantalla con la etiqueta "Interpretation." Luego haga clic en “Spanish” y seleccione "Mute original audio.”

Can someone send Elizabeth Gomex panelist link? She apparently doesn't have it. Thanks

Link sent

La presentación de hoy se publicará en el sitio web del DDS en: https://www.dds.ca.gov/initiatives/ds-task-force/

¿Comentarios? ¿Preguntas? Mande su correo electrónico a DSTaskForce@dds.ca.gov

Today’s materials are posted on the DDS website at: https://www.dds.ca.gov/initiative/stakeholder-events/

THANK YOU

I WILL BE HERE 2PM

Can I say I like the 10% as part of the quality incentive IF 90% is a rate that provides for a base rate that is sufficient. I know what is "sufficient" is subjective.

Good overview Jim. Question for Brian on the regional center performance measures, can you mention our discussion we had yesterday that unmet need - people not receiving any services and also those shut out of the system in some way (due to eligibility determinations) will need to be somehow be measured

Good overview Jim. Question for Brian on the regional center performance measures, can you mention our discussion we had yesterday that unmet need - people not receiving any services and also those shut out of the system in some way (due to eligibility determinations) will need to be somehow be measured

Here's the link for rate study implementation info: https://www.dds.ca.gov/rc/vendor-provider/rate-study-implementation/

Does the NCI survey address people with 0 POS? I thought they were excluded.

Aquí está el enlace para obtener información sobre la implementación del estudio de tarifas: https://www.dds.ca.gov/rc/vendor-provider/rate-study-implementation/

Kelly—They are. That was a big topic of conversation in yesterday’s meeting.

Thanks Kathy!

How do the RC outcome performance measures, quality incentive program, and performance outcome measures ($10M authorized in budget) fit together? Big, important pieces, how do they all work together?

Could someone make sure I get the invitation to the RC Measures workgroup? Of course, I would be in the audience but sometimes I miss the invite. I will try harder to look for it. Janice Hinton and Lori Luzader are leaders within the FRCNCA, as well as Robert Rochin and Diane Storman who can be available to support the family and individual perspective. I can provide emails.

*also if you are looking for parent leaders that are closer to the community (and specific communities) we can help with that

he said hi!! happy Christmas

Thanks for the feedback Jim. Have a question: We are going to be under a high inflationary environment for the next few years. The TARGET Rate is being established in January 2022 including the inflation since the study was completed in 2019. By 2025, if we are not adding the new inflation cost to the TARGET Rate we might be 18 to 25% lower compared to the cost of living in 4 years (5-6% inflation). Have you considered adding the inflation to the TARGET rate every year until 2025 as the different milestones of the program are being implemented 25%, 50% and up to 90%. It will maintain the capacity of the providers competitive in the work environment to provide better services and retain quality of staff that was the purpose of AB136

Echo what Pablo said. That is a great concern! The rate model in 2022 will not catch up the inflation in 2025. We have so much difficulty in staff retention and recruitment competing with other industries that provide better wages.

It will impact SDP budgets, too.

Thanks Nancy for the response. One question to either you or Jim Knight is one related to rate study implementation - how will those services (like housing, etc) not included in the 2019 rate study be included in the rate study implementation - how do we make that happen? Also in the future - how do we work together to factor in the rate study implementation those services under Self Determination (none of those services were directly part of the rate study). Thanks! I like hearing Jim talk. LOL

Wow! This is a really transformational change. Hopefully it makes changes to the system...improving the system will be operationalized...small wins mentality on this is necessary though

Marty— When I help a family identify their unmet needs and changes in circumstances, we use the current rates for vendors— it seems that the rate adjustments will impact SDP budgets that way, right?

Can there be a list of agencies and vendors that are passing this on to their DSPs? Even if it’s vendors telling us. I would love to support agencies that support our staff.

@aaron can you share the link

Question for Pete (in the second half of this meeting) - can we get a brief update on how the status of the vaccine requirement for regional center staff and provider employees and any steps DDS is taking related to omicron in the coming weeks. Related to that - will COVID-19 DDS directives (including those authorizing remote and alternative services) be continued beyond Jan? I know the update will need to be brief in the second half given time. Thanks

Yes to everything the Sylvia said!

*that

Could we also get a list of the vendors that choose to pocket the funds?

Also high needs might include very young children in Early Start and standards to get timely support and help to families is essential in the discussion Many of these kids are Status 2

Early Tribal Outreach is a dream come true and so long in coming...………….so very grateful

Please make sure to make space for training and partnership with FRCNCA FRC members in the Early Start Tribal outreach initiative to ensure that engagement of all parts of the system...RC, FRC and families

Georgetown National Center for Cultural Competence is the national experts and it's such a great asset that all of CA's projects will benefit through their evaluation!

Good update Leinani. Thanks always for your work! BTW on community engagement - is there effort to engage with people and advocates who are deaf (or have loss of hearing) especially with families who have infants and toddlers who are deaf or have some hearing loss - and adults who are deaf or have some hearing loss? I think there was engagement - but if you could mention it

I agree it is important to build a relationship with your service coordinator and have less clients makes it a lot easier but an another issue is a lot of my parents keep getting new service coordinators sometimes several in one year.

Someone asked in the Q and A "when and how will coordinated family support services become available to people?" Can we get that question answered so everyone can hear it?

Leinani, this is a great number of efforts on multiple fronts that will have a collective impact, thank you

So pleased to see Social Recreation & Camp as an equity related initiative! It’s so important that the related purchase of service policies include everything learned from years of disparity data accumulated since these services were last available for funding.

Agree Shannon!

The people doing translations may need help in understanding and learning about disability rights and issues - and services so there is better familiarity of terms used and importance of words used

Agree, Shannon and Yvette… but we are getting a ton of push back from RCs already.

Echo Aaron's comments!

Sorry, I am Yvette Baptiste, I am the Chair of the Family Resource Centers Network of CA and a parent.

BTW forgot to mention my support for what Tiffany raised regarding inclusion of regional center workers on the regional center performance measures workgroup. We had similar representation in years past (ie Catherine McCoy and others) who were part of task force workgroups to give a ground level worker point of view that was valuable,).

Support what Elizabeth said - adding to that what is the status of social recreation/camping and other restored services? What will happen next now that the regional centers submitted their revised POS plans and outreach plans related to the restoration of social rec and related services? Tri counties regional center is doing something good - I think - in reaching out and steps to restore.

To Elizabeth's point, now that DDS has the regional center their draft POS policies and outreach regarding restoration of social rec and related services - will there be a directive from DDS that outlines what is supposed to happen - to provide all of us direction and guidance - so everyone is on the same proverbial page? This needs to happen. Thanks

Yes, their wages are too low in some areas. I understand that they are having issues in finding staff.

Thank you! Kelly! Great analogies!

Hi Nancy and Leilani: the Board of Speech Pathology has a regulation that requires in Person supervision of the Assistant. This policy prevents the distant services in the regulations for families receiving Early Intervention. Families living in rural and inner cities are getting their services dropped due to this barrier. We need help to reconcile the regulations with the intention of the legislation. ASHA recommends that Tele-supervision for the assistants. We need your help in the field to support the families.

Thank you Yvette!!

To Elizabeth's point, now that DDS has the regional center their draft POS policies and outreach regarding restoration of social rec and related services - will there be a directive from DDS that outlines what is supposed to happen - to provide all of us direction and guidance - so everyone is on the same proverbial page? This needs to happen. Thanks

And KRC families have received a mailing about Social Recreation and Camp!! Thank you, Michi!

Echo to Marty's suggestion "DDS issues a directive - to provide all of us direction and guidance - so everyone is on the same proverbial page

There has been some issues of RCs finding the addition of some social and recreation services as duplicative of what the client is getting and that is a slippery slope for families to advocate

Thank you Marty for your support. I also Echo Marty’s suggestions.

Social rec/camp and related services are really about wellness - and we need to characterize those services and supports in that way. The pandemic lockdown has taught all of us that being isolated - and not having access to those types of services - is a huge mental wellness and physical wellness issue. The updated branding of this is important so that policymakers in the future will not see this as frivolous. It is critical. It is about wellness.

Email DSTaskForce@dds.ca.gov for update questions or comments.

Can we make it more plain language?

Yes I can do that

Perhaps breaking this up into several sentences?

Agree with Kathyrn's point on adding "person centered..." to the guiding principles so it reinforces that critical principle

Transformational change needs to be linked to how it transforms or changes a person's life, how it connects and advances a person centered goal and how it connects to outcomes linked to people. Not easy to measure but critical for us to do. Doing that would be transforming - because it is foundational to other changes

What about changing “behaviors” to “needs”

YES!

I support what Pablo suggested

MAY BE COMPLICES TEAM

I agree with everyone and also with Dr. Poulsen.

Aren’t transformations actually changes?

Also adding that needs to look at the "whole person" - part of the CalHHS guiding principles

(says the English professor…)

Whole person looks at the person (including a child) needs - including housing, food security, transportation, education, health, employment, wellness, etc in and outside the DD system -

Struggling with 'beliefs, values, attitudes' - with over 300,000 individuals , who obviously have many different 'beliefs, values, attitudes', what are we trying to convey??

If you are a participant, but not a Task Force member, please use Zoom's Q&A feature at the bottom of your screen to ask questions. Or you can email your question(s) directly to DSTaskForce@dds.ca.gov

I appreciate the work of everyone who came together to develop this vision statement a couple years ago and also the discussion we are having now about possible updates. The Lanterman Act prioritizes choice and respect for choices made by people served by the regional centers. I love that choice is already specified in the vision statement, and I would move it up. “response to the choices, beliefs,” etc.

would recommend plugging 'person centered' into the vision statement somewhere

Here is the link to the handouts being referenced: https://www.dds.ca.gov/wp-content/uploads/2021/12/DSTF_Handouts_12172021.pdf

Can we add an equity principle (in addition to culturally responsive services)?

The Early Start Act is not mentioned and should be added

Another overall comment is to consider reorganizing these principles to focus the beginning on the key tenets of the vision statement.

The IFSP is not mentioned, but in places that mentioned IPP, we should add IFSP and discuss also “families”.

regarding person centered as an policy advocate and professional in the system but not sure if this is off putting to families in Early Start where the service is family centered and to families whose child has a need for lifelong family support...yes the supports are still person centered always but family is important to many

I agree don’t care for the word consumer.

+1 to change "consumer."

Agree - Early Start needs to be mentioned or early intervention. That goes back to mentioning other rights (includes early intervention, IDEA,, civil rights and voting rights.....all important )

Marie is always very eloquent to present the ideas!! Thanks!!!

As for item 2, I really like the language in the HHS policies focusing on how to allow someone to thrive.

I agree with Marty on removing the word “consumer” in the DDS guiding Principles and other places in DDS’s work. Using Person is a much better concept than consumer. For myself, I view myself who is person that uses Regional Center services, NOT a consumer

Person Centered IPP is central to choice and should include decision makers during these principles. In order for choice to have a true meaning.

Thank you Kathy!

On item #4, We need to include somehow “prevention” not just response.

Can we begin to clarify that a true person centered plan includes input from everyone of importance in a person’s life? It would be great to move the IPP process towards one where service providers, family members and others are involved in the IPP process.

#3 we need to add: “create a system that will allow families or individuals to maintain mobility in the State and the services would be able to follow them. The service code of the providers should allow them to work in any are with the local regional center.

Just a reminder that nonverbal people still communicate their needs and wants—often through behaviors.

Thanks for that Kathy. Important point.

Thank you, Kathy! This is a really important point.

Like the Integrated setting language!

Like the integrated environment

I like "most integrated environment" but state law phrases rights in terms of "least restrictive environment."

A multidisiciplinary team should support the integrated environment. Is he being affected by sounds, smells etc in the surroundings that are causing him to go into the disarray?

…. they need and 'want' ….

and as well as their human rights

Thanks all for the expanded definitions and discussions on how to put least restrictive into practice.

what number are we on?

@Yvette, 3

Shout out to my buddy Ryan Duncanwood.

On item #4, We need to include somehow “prevention” not just response.

"appropriate" is too weak, can we use effective?

or evidence based

I agree with Pablo but we don’t have much prevention services.

Also can we add accessibility so the consumer participates? Often health and safety is performed by staff with no language accessibility to include the consumer

Yes @Lisa's comment

Yes, we should be using the lens @ken is talking about

Liked what Ken said

I want to reiterate and echo comments about respect for non-speaking individuals. I do not want DDS to condone steps backwards to removing the voice of people who use aac to communicate or people who communicate without words.

some social rec services are preventative in nature so very timely

there is also the idea of income inequality and the institutional bias the supports that inequality has great impact on service use

Agree with Aaron, but would also suggest that equity needs to be moved up in the list. Although these should all be equal items, there is a statement made when you decide how to prioritize the principals.

Ditto to Aaron's comments- equity services

Note that equity is first item in the HHS principals.

I agree with Aaron.

WHOLE PERSON - includes mental health, wellness, behavioral health, physical health (healthcare), housing, transportation, employment, food security, everything crossing systems. Stark point was raised at the info hearing by Legislature on Lanterman-Petris-Short Act and issues that impact many people in our community - including those people in families who provide supports or have people who have developmental disabilities, etc Looking at whole person - in a person centered way tied to person centered outcomes will also mean we will see (if done right) unmet needs, disparities, and also good things too. Sorry for being verbose but I had waaaaay too much coffee.

+1 @ Yvette

yes, I like it!

Amen! Marty! Thank you!

I agree with Marty! Maybe a blend would be ideal!

Thank you Marty.

Marty is preaching today!

The principle #6 will provide more support and understanding a guiding principle if politically it is presented in a way that works around the individual to make sure “the individual will have the model of care….”

On #8, I do think it is important to keep the focus on maximizing federal funding.

#7 it should include that all models will use all state fund to match funds from the federal government to promote financial sustainabilty.

Sorry 7-8 are blended

Thank you @Kathy...Michael Smull talks about basement level services but we want service quality that is at a high level

it should involve consumer feedback

*#9

monitoring service delivery should also include RC, not just service providers

Yvette is right. It should involve Consumer and families.

#10 the technology: The technology should be included for providing services, documentation, monitoring and data collection to drive services. It will allow the department to identify best practices to benchmark around the state

@Elizabeth yes!

Great term for it Keicia!

Add 'with more traditional communications utilized with those who are either without technology or who are technology challenged'

Technology is not always sensitive to people who don’t have access. It is also a way to leave some people out.

Agree with Kelly!

Again Thank you! Dr. Poulsen. There are some people who prefer human contact.

I would like to see something added that is about a commitment to collaboration across systems and groups that is dedicated to relationship building, understanding, and being solution focused in order to continue pushing these other principles forward for the benefit of the clients and families we serve

Cute coworker @Kelly!

Technology also includes as some have mentioned, those devices that help people communicate, to get around, etc. Agree with point raised by Marie and seconded by Elizabeth. There can be a danger in later years - as a cost containment measure - to replace in person contact for virtual services. Need to have different options - reflecting person centered needs and goals and outcomes. Different strokes for different folks (to quote Sly Stone) BTW as part of our guiding principles just ask people to listen to Aretha Franklin sing "Respect" - and she can sing it. LOL

internet safety and precautions should be included

@Terry—great point.

#10 The Department should also lead with other State agencies to remove barriers to allow remote services as part of that principle.

On #4- Ensuring consumer health and safety "in a timely manner is critical"-Adding a set response time to the crisis response would be helpful. Our aging population is waiting to long for necessary assessments to move to higher levels of care.

Do we have a date for the next DS Task Force meeting in mid January?

Excellent point, Kimberly!

Kimberly Mills is right.

Great point Kimberly!

@yes institutional bias

Thanks Kim

BTW, there are good questions or comments in the Q and A - need to make sure we all read those and respond at some point.

Possibly adding a principal regarding service creation and capacity to meet unmet and or emerging needs.

I like Dana's suggestion - should be a way to fit that in. It addresses a big issue we have all raised about unmet need - but also addresses the issue of change and innovatin

Totalmente de acuerdo con Aaron.

@MaryLou Innovation to improve the policies and implementation of services of supports should be an ongoing effort driven by feedback from self-advocates, families, and partners in the system...actually just want Nancy and her team are doing now

Nancy and MaryLou, thank you for giving time to the difficult, important task of reworking and rewording principles in a large setting. No easy task.

thank you

Please add guiding principles to unmet needs and changes in circumstances. I am in agreement with Marty.

Yep - that was it Nancy. A couple of us old timers on DS Task Force remember it like that

I think if we take up suggestion by Dana - supported by me and Elizabeth would help make that guiding principle on flexibility better

Early days of the Lanterman Act was all about responding to change in how people received services - though that was in the guardrails of funding resources. But a lot of things were being created that didn't exist before...and we need to capture that in the guiding principles.

that first task force was called Future of the RESIDENTS of the Developmental Center task force. it was person = centered and allowed everyone to start the difficult conversations by focusing on the individuals.

Great point Sylvia. Keeping track of the number of like Health & Safety requests and evaluating them to be added as a typical service makes sense.

Great job Mary Lou. Thank you Nancy for your leadership. Thanks to the entire DDS staff for your great work. Happy holidays everyone!

#12 Flexibility should be incorporated into the system to address choice, “prevention” and special circumstances, such as allowing Health and Safety exemptions “supporting the individual choice”.

Thank you, Dana!

I agree we are in desperate need of Ebsh homes . Some high behavioral clients are told there only options are supported living or self determination.

Amelia was born in 2012😍

Mary Lou is doing a great job in facilitating this section of the agenda - appreciate you acknowledging the Q and A people - and also responding to the chat and raised hands. You make sure everyone is being taken care of. Not easy to do.

Another principle should address the “continued development of personnel providing services to individuals” advocating with the Legislature to allow grants to the educational loans after they have been providing services for more than 10 years. That will create a great drive and if it is a principle will bring into the “system” more qualified individuals that love to work with our families or individuals.

Gaby!!!!! I miss you!!!!

Big concern….I do not see much on reducing disparities in the current Guiding Principles. I may be wrong but just wanted to make sure I include this in case you can add.

Great point Gabby - and thks to Michi for pointing it out. It goes back to the WHOLE PERSON and other services in other systems

Well done Marylou!

Thanks to ASL intepreters and language interpreter (Marc)

And to Amy and Taylor

Thank you so much, Marty! =)

Happy Holidays to all!! Glad Aaron you are ok!

Aww, thanks Pablo :)

Happy days ahead to everyone. I like that snowman Katie!!!!

Wishing you all a wonderful holiday season and peaceful new year

Happy Holidays!!

Thanks everyone , great meeting !

Happy Holidays to everyone!

Happy Holidays.!

Happy Holidays